![]() |
LivingWithTrisomy.org
|
Links to family web pages offering information & support to other families Living With Trisomy
|
|
|
| Living With Trisomy 13 - Extensive photo albums and updates of children living with Trisomy 13, Trisomy 13 support and resource links, special information and support for prenatal diagnosis and other useful information. |
| Trisomy 13 Survivors - a site to reassure you that you're not alone, and to share stories of survivors |
| Trisomy 13 Support - Here you will find a wealth of information and pictures of other Trisomy 13 babies... |
| Kia's
Trisomy 13 Tripod Site For help with "What You Need To Do" when you have a Trisomy 13 prenatal diagnosis... There is a birth plan that will help ease the journey... |
| Kia's Trisomy 13 - A personal MSN site dedicated to the memory of Kia who was diagnosed with T13 @ 24 1/2 weeks and went full term. The site is to help others who may need help with the diagnosis. |
| Leanne and Family v Patau Syndrome - Support for families dealing with Trisomy-13 and some other rare dissorders. Support for losing a child. |
| http://ourlittlegemma.com - 52 minutes in our arms, forever in our hearts |
|
http://www.babiesonline.com/babies/a/angelanastacia/ - We decided to continue the pregnancy, but she passed away on her own at 21 weeks. This is a memorial site for our much loved baby girl Anastacia. |
| http://geocities.com/prattyates/ - My son, my angel Jordan Nicholas Pratt - T13/Robertsonian Translocation contact family at teri.athome@verizon.net |
| http://www.angelfire.com/journal2/arsonbad/bryanian.html In loving memory of Bryan Fitzgerald King, full T13. From March 17th to March 21st, 1981 you lived the only life you were meant to live... |
| www.amayafaith.com - This site is dedicated in loving memory of Amaya Faith Lynch. Who at 21 weeks in the womb was presumed to have Trisomy 13 - Patau Syndrome. We hope to share with all, our experience with Life, God, and this rare genetic abnomality that has altered our lives forever, but in such a beautiful way. |
| The Healing Power of Prayer - Web site inspired by Natalia - a five year old child with Trisomy 13 |
| http://www.bryson-blog.blogspot.com/ - Bryson's Blog: A weblog about my grandson who was born with Trisomy 13 |
| http://gregoryarritola.tripod.com - We told our doctors that God knows the last day of this child's life and we don't want to be the ones to choose his last day. Some asked how we could hold on to hope for Anthony given his diagnosis. Our response was: "We were asked to be his parents, to provide him with life, love, home and security. That is what we are doing and we will do it all the days of his life." Anthony's days were 6 shy of his 1st birthday. |
| http://www.bryson-blog.blogspot.com/ - Bryson's Blog: A weblog about my grandson who was born with Trisomy 13 |
Unfortunately, due to the large amount of spam that our "submit a link" page was generating, I have been forced to do away with that feature. So to submit your rare trisomy child's website for linking, please use the below "Contact Us" and include the following information: your name, website url to be linked, which chromosome # to be linked under, website's title (if any) & a short description of your child's site. I apologize for any inconvenience this causes legitimate rare trisomy submitters, but the spammers out number you at least 100:1.
|
All links from this site reflects each families personal journey with raising a Trisomy child. It is not meant to replace any medical advice of a professional familiar with your specific condition. The personal journeys in any parent's linked sites are only their opinions and their own journey with having a Trisomy child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within the pages as to your own child's symptoms and medical condition. |
Site last updated: 03/29/08